As I struggle yet again with a out-of-whack thyroid
, I am slowly but surely coming to grips with having a chronic illness. My thyroid will never again work normally and I will have to take replacement hormone for the rest of my life. It is amazingly difficult to accept this fact, especially since there is a lot of confusing information out there, as I have outlined before
. I would love to share with others but it seems like most of what’s out there is disturbingly baloney
-influenced. Of course, there’s Mary Shomon’s advocacy, which seems to boil down too often to “Abbott is out to get you.” But much worse is an online group that welcomes alien abduction stories if the person believes that the abduction caused the hypothyroidism. Why is it so difficult for people to accept “I don’t know”?!? We don’t really know what caused most hypothyroidism. Sure, in my case, it’s caused by an autoimmune attack but no one knows why the body all the sudden decided to attack itself. No, aliens were certainly not involved! It is so absolutely unhelpful if people keep mixing nonsense in with the help or information! The most helpful, scientifically-grounded book I’ve found so far, is Maureen Pratt’s book
. Unfortunately, she is proposing prayer and meditation as helpful tools for dealing with this disease. Sigh.
Fairy tales seem to creep in no matter what.
Note added May 10, 2010: I think this condemnation was too harsh. I think Pratt’s pushing of prayer and meditation as part of dealing with a disease felt very unhelpful when I wrote this post – I was feeling miserable. Now, feeling better, thanks to an adjustment in dosage
, I realize that prayer and meditation might be helpful for some people when they are learning to deal with the effects of a chronic illness on their life. Just keep in mind that neither can be used as a replacement (Pratt does not claim that). They can be an adjunct to your treatment, though.
I did learn something about the bioequivalency debate. It’s not necessarily that the generics are not bioequivalent to the brand-name drugs but there is no control that their potency is consistent enough from batch to batch to prevent too much fluctuation. Fluctuation in the level of replacement hormone can contribute to the recurrence of symptoms, as I’ve found out. Of course, I am not sure if the flaring up of my symptoms are due to switching generics but, at this point, that seems to be the most likely culprit.
Okay, this is my gripe of the day written through a bit of brain fog, so I apologize if it doesn’t make as much sense…